Anxiety Over Unknowns and More Details

We are t-6 days until surgery.

Last night, while we were laying in bed, I asked him to lie still so I could take in his face.  I love his face.  The change has happened so gradually to me that I don’t remember him looking any different.  He is still absolutely beautiful in my eyes.  He is my prince charming.

I am keenly aware of the fact that the face I see today may never be again, so I want to take it in right now and absorb every line, every hair, every whisker.

So, why is he getting this surgery?

Short answer: This surgery is being done because he has TED (Thyroid Eye Disease).  Duh, right?  🙂

Long answer:  TED causes the eyes to protrude out of their sockets.  This causes extreme pressure on the eyes and distorts his vision, causes headaches, and makes him unable to close his eyes all the way at night.  Yes.  When he sleeps, his eyelids are not big enough to completely cover his eyes at night.  I know.  Just thinking of that, makes me irritated too.

This surgery involves, a few cuts around his eyes, and then chipping away at the bone around the eye sockets so that the eyeballs can sit back into the sockets thereby reducing pressure, and improving vision (hopefully).

The kicker is, we won’t know if it works until he heals. Sounds fun, huh?  The really sad part is, not much could be worse than how he feels right now, so it’s a reasonable gamble. The great part is, he is being taken care of by the best specialists in the world.  We are lucky ducks.

Thank you for jointing us on this journey.  Feel free to post questions in the comments section!


Preop Results and Raw Nerves

Dude.  David is my hero.  He’s just sailing right along all calm, cool, and collected, while I am twitchy, emotional, and very bi-polar.  He is such a rock.  I swear sometimes I think he is just trying to punk me, he is so smooth, and I am such a basket case.

Preop test results came back, and he is indeed alive and kicking.  His heart looked awesome, but his blood tests came back with elevated T-4. Not a show stopper for surgery, but the Nurse Practitioner had to notify his Endocrinologist who will be reviewing his meds after surgery.  Weird thing is, with elevated T-4, it means he has extra thyroid hormone hanging out (Hyper), but David says he feels more Hypo.  He’s been feeling lethargic, and down a lot lately.  Really not hyper symptoms at all.  It could just be psychological symptoms of the stress of upcoming surgery thought.  Luckily, his Endocrinologist doesn’t just go by blood tests, and allows for the patient to give feedback on how he/she FEELS too.  My God, we have been so damn lucky with doctors.  I am not a praying woman, but I thank the Universe every day to have had such an easy time with doctors.  I have ready thousands of horror stories about people and the issues they have had finding good doctors.

So, yah.  Now it is just a matter of getting our ducks in a row at work so we can both be out for at least a week.  Y’all may not know it, but David and I not only work at the same company, but we are in the same department.  So…when we are out at the same time, the department is down two people.  Luckily, we can support our co-workers from home, just not as thoroughly as if we were in the office.

Before the questions begin about working with your spouse, I will answer some of them. No, it is not stressful.  We get along really well.  We really like one another.  We are kind of freaks that way.  Yes, we do get pissy with one another at work every once in a while, just like anyone would with anyone else, but since we are married, I can tell him he’s being an ass – it’s awesome.  It lasts maybe a few seconds then it’s done.  No, we do not show each other favoritism.  I tell him to fill in the damn form just like everyone else.

So, yah.  He still hasn’t agreed to let me post photos of him yet.  I will wear him down.  🙂

Thanks for following our journey!

PreOp Completed

Today, he had his preoperative appointment.  They took his vitals, ran a full blood panel, and took his medical history.

The nurse practitioner went over his preop instructions, like no food after midnight, etc… She said the surgery should take two and a half hours, but I don’t believe that one bit.  An eye lid lift just on it’s own is estimated to take an hour, so I have a feeling this one might take longer.  I guess we will find out in 2 weeks!

Of course healing time varies per person, and we can’t even begin to pretend to know how long that will take.  It could be a few days before he is ready to jump on the computer, or it may be a few weeks.  Again, we will see.

I am planning on taking the first week off of work to be home and will play a second week by ear.  I can’t do my new job from home, so I may need to come in to take care of some imaging and shipping, but again, we will see.

That’s it for this update!  I will try to get some before photos if David will let me, so we can post them for comparison after.

Thanks for following our journey!

Step Two is Thursday

The preop appointment with the nurse practitioner is this Thursday. 

The most common question everyone is asking is, how long will the surgery take? At this point, we have no idea. I am quite literally sharing everything we know as soon as we know it. Expect an update Thursday or Friday this week. 

This is really happening, isn’t it? Just a few more weeks 

Nothing new to share

Several people are asking about test results from the CT scan on Sunday. 

The scan wasn’t for the purposes of testing or getting any type of results. It was a CT scan for the surgeons to see how his ocular openings are shaped so they can plan his surgery. 

We haven’t heard from the nurse practitioner for the next appointment yet. 

Thank you to everyone that asked and are following our journey! We are still taking life one step at a time. 

Let’s Talk Doctors

He had his CT scan this morning and the images should be ready Tuesday for the doctors review. The next appointment (which is not scheduled yet) is the pre-op appointment with the nurse practitioner. We do not have a surgery date yet. 

We are so very lucky to live in San Diego with every day access to the Shiley Eye Center and the team of doctors that David calls the three wise men. He has been monitored and coached through this disease by the very best in the nation. 
His surgery will be performed by Dr. Korn with future follow ups by Drs. Kikkawa and Granet. Click the links and read about these men. We are so very lucky to have them on our team.