No News is Not Necessarily Good News (It’s Not Bad Either)

It’s been a while, huh?

It’s been nine months since David had his last check up at the Shiley Eye Center, and one year since he had his last blood work done.

So, no news is not necessarily good news, but it’s not bad either.  It’s just not what we wanted to hear.

David’s May blood test returned high T4 (Hypothyroidism), and slightly high A1C (Diabetes) numbers. I am not really surprised though. I’ve been telling him for weeks that his medication is off, but he kept telling me he felt fine.

It’s the little things that I noticed though.   Tiny, minute things that most people wouldn’t make note of…. The break outs on his back, the forgetting from day to day that he told me this story already, the adamant denial that he put something in a particular place, the slight annoyance at completing daily chores.  These things are not a pert of his normal (whatever that word means) existence when he is healthy.

So, we get to experiment with dosages again.  I don’t recall this process being pleasant for him, so I am working on building up some additional armor that I can lend to him when he needs it.

This too shall pass, and we will carry it along together as it does.

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Thank you to the Graves Disease and Thyroid Foundation

I would like to take a moment to thank all of the visitors from the Graves Disease and Thyroid Foundation site.  I hope that David’s story through my eyes is helpful to you and encourages you to share your experience too!  I have been writing blogs for over 12 years, so when David was diagnosed, well, even before, this seemed the most natural thing to do in order to share information. It was important to me to yell from the top of the mountain (figuratively speaking of course) what we were going through, because our experiences count as valuable information to others, and there was so little information my family could draw from.  So, please get your story out there!  You can even send it to me and I will publish it, I don’t care, just share!  The more we share, the more we learn.

A week of blessings

I just can’t stop smiling this week.

Yesterday, we got the awesome news that our oldest son, who had been suffering with a ruptured cervical disc for a while now, will be able to have disc replacement surgery and will be back on the rugby field by this up coming season!

Today, David got glasses.


…AND sunglasses. As we walked out of the store, all I can hear him saying is, “Wow”, “Oh my god, wow”, “wow”. Ha ha! He’s been reading all the fine print on everything out loud to everyone.

It’s so amazing! I am beyond thrilled for him, so I can only imagine how excited he is feeling.

It’s been an amazing week so far. I can’t wait to see what other awesome things life has in store for this family!!!!

The Eyes Have It

Look at this beautiful man!

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David had his 5 month post op check up last week, and we couldn’t be happier!  He requested a pressure test to see how that has changed since the surgery.  The results are amazing.

Pre surgery, the pressure in both of his eyes was around 29.  Last Thursday, it was 17/18!  You know what that means?  NO MORE GLAUCOMA!!!!!!

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He received a referral to the Optometrist, so he can get glasses!  Y’all, this is HUGE for both of us!  Once he gets glasses, I will allow him to drive, and once he starts driving, we can be independent again!!!!!!!!

We are so lucky to have the best care anyone could ask for in his doctors at Shiley Eye Institute, and UCSD.  I really don’t know where we would be at this point, if we didn’t have this awesome team on our side.

 

 

11 Weeks Post Op, and Wow

It has been a little over 11 weeks since David had his surgery.  The doctors are amazed with his recovery and comment on it at every visit.

His double vision has subsided and has cleared quite substantially.  His focus points are still ify which makes it hard to drive still, but most other daily activities, he is doing as he normally would.

Before the surgery, his eyes measured at a 27mm and 25mm protrusion.  Last week, at his check up, his eyes measured at 19 mm on both sides!  That’s a huge difference!  The doctor said his eyeballs were out of the socket at least an inch internally!

So, without further ado, here are the before and afters!  This is amazing.

Four Weeks Post op

We are in Vegas! 

Our oldest son attends the University of Arizona and their game was scheduled in Las Vegas during the Vegas Sevens tournament. The thing is, he didn’t know we were coming!  (We didn’t either until lunch time yesterday!)

I think both Ian and David were happy to see each other!

   

 

Thank you to my friend, Joni, for snapping this moment! 

As far as recovery goes, he is doing really well! He still favors his right eye and is still Popeye by the end of the day. He is getting a lot of grit and eye gunk almost continuously. Being here in the very dry Las Vegas air is not sitting well with his eyes either. His vision, however, is almost normal for a man in his late 40’s. That is awesome!

Our second follow up with the Doctor is next Thursday. We are going to talk to him about the left eye, the eye gunk, and dryness.

Three weeks post op

  
He’s been back at work for two weeks and is doing really well!

His left eye is healing slower than his right eye and by the end of the day, he looks like Popeye with one eye closed. The double vision is getting better. Bright lights and sun light are still pretty bad for him, and he is fighting with “eye grit” daily. 

He says he the vision in his right eye is very clear, and he can read his iPhone screen with his left eye closed and no glasses. That’s so awesome. 

He has another check up in a few weeks!